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Marlie Casseus First Words after 16pds tumor removed: 'Thank You' & Going back Haiti

Description: Casseus says "Thank You", her first spoken words in years, to the community on Dec. 19, 2006 
Casseus says "Thank You", her first spoken words in years, to the community on Dec. 19, 2006
Description: Casseus' first public appearance in Sept. 2006 
Casseus' first public appearance in Sept. 2006
Description: Casseus before her first surgery 
Casseus before her first surgery
Description: Marlie Casseus before her tumor. 
Marlie Casseus before her tumor.
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Published by bana2166- 12-19-06
news Marlie Casseus First Words after 16pds tumor removed: 'Thank You' & Going back Haiti

Haitian Teen's Marlie Casseus First Words after successful surgeries to removed 16pds tumor: 'Thank You' and she's going back home (Haiti) for the holiday.
Marlie Casseus has undergone 4 surgeries; She stopped speaking at the age of 12
MIAMI A young Haitian girl, who had a sixteen pound tumor-like growth removed from her face, is finally able to speak and her first words after years of silence were ?Thank You?.
Marlie Casseus was unable to speak for years but now, after multiple surgeries at Holtz Children's Hospital at JMH, Marlie is saying thank you to the people responsible for the medical miracle that saved her life.
Casseus arrived in Miami a year ago and underwent multiple surgeries to remove the growth and then more surgeries to reconstruct her face.
Dr. Jesus Gomez, the maxillofacial surgeon who led the teams who operated on Marlie at Holtz Children's Hospital, said the mass that engulfed her face probably started growing when she was as young as 5.
Her condition is a rare form of polyostotic fibrous dysplasia, a nonhereditary genetic disease, which affects every bone in her body, though not to the severity with which it disfigured her face.
Marlie's mother, Maleine Antoine, says her daughter never spoke clearly, and her permanent teeth weren't appearing, but she didn't worry until Marlie was 8 and she noticed two small bumps on either side of the girl's nose. Marlie also was beginning to complain that her mouth and throat hurt when she ate.
Haitian doctors could do nothing. With no advanced medical imaging in the impoverished Caribbean country, no one could see that the bumps weren't growing on the bone ? the bumps were the bone ballooning and turning to jelly, riddled with pockets of liquid and air.
What everyone did see was Marlie's nose stretching into a snout, her eyes sliding farther apart and her upper lip pushing out past her chin.
By the time she was 12, she could no longer speak.
Over the past year, Marlie has undergone four operations, the latest in October to replace a titanium plate previously implanted to replace her jaw.
Her features have been repositioned and hard polymer has been used to replace other facial bones. Doctors say she may need more cosmetic surgeries when she stops growing.
Doctors say the facial mass won't grow back, though her condition requires lifelong monitoring.
Marlie is going home to Haiti for the holidays. She?s looking forward to going home a new person and says she is filled with new found hope and a desire to live.
The surgery was funded by the International Kids Fund, which continues to raise money for her ongoing care.
Marlie will need to return to Miami to continue to recover and the International Kids Fund seeks the ongoing support of the community to help pay for her treatment. Her family does not have medical insurance and since she is not a U.S. resident, the Holtz Children?s Hospital at UM/JMH Medical Center cannot use taxpayer?s money to fund her procedures. Instead, it offers Marlie's medical care to IKF at charitable rates.
IKF seeks to provide medical care to needy children from around the world who suffer from life-threatening illnesses that cannot be treated in these children's countries.
If you'd like to help Marlie and the International Kids Fund, you can call Neighbors for Neighbors at 305-597-4404.
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By bana2166 on 12-19-06, 03:01 PM
For all the bullSh#t going back home in Haiti, these is a feel good story ....
My heart and love send to the Marlie & Casseus family ...
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By bana2166 on 12-19-06, 10:20 PM
Haitian teen released from hospital one year after life-saving surgery

Haitian teen released from hospital one year after life-saving surgery
MIAMI (WSVN) -- A teenager who traveled to Miami for reconstructive surgeries in order to correct damage done by a massive tumor will be able to go home for the holidays.
Fourteen-year-old Marley Casseus received an early Christmas present on Tuesday when doctors allowed the young girl to leave Jackson Memorial Hospital and head home to Haiti for the holidays.
New friends said while they were sad to see her go, the teen left an indelible mark on each of their lives.
"She has been brave, she has been courageous, and she has been an inspiration to all of us," said Maria Luisa Chea, the Director of the International Kids Fund.
The young girl had been staying at the hospital during her recovery from several reconstructive procedures performed after doctors removed a massive tumor from her face in the fall of 2005. The 16 pound tumor had severely affected her brain and her ability to breathe.
At a press conference held the same day, Marley and her mother thanked the hospital staff for their unwavering efforts to help the teen.
"Thank you for everything you have given to Marley. Thank you, thank you so much," said Marley's mom, Maleine Antoine. "You have a special place in my heart. I will never forget you."
Marley demonstrated some of her newfound freedoms for the crowd at Tuesday's conference, including her ability to drink liquids on her own. She also performed a dance dedicated to all of the people who changed her life.
The girl's doctor, Dr. Jesus Gomez, said that while Marley's progress is amazing, she will still need further procedures to complete the reconstruction.
Gomez said he plans to wait about two years, until the teen is done growing, and then perform the last surgeries needed. The operations will, of course, require more money -- money that Marley and her family do not have. Anyone interested in helping the teen can contact the International Kids Fund at 1-877-IKF-KIDS to find out how.
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